Muscular Dystrophy – Modus Health

M. E. Busse, O. R. Pearson, R. Van Deursen, C. M. Wiles. Quantified measurement of activity provides insight into motor function and recovery in neurological disease. J Neurol Neurosurg Psychiatry 2004; 75(6):884-8.

H. A. Hayes, D. Dibella, R. Crockett, M. Dixon, R. J. Butterfield, N. E. Johnson. Stepping Activity in Children With Congenital Myotonic Dystrophy. Pediatr Phys Ther 2018; 30(4):335-339.

C. M. McDonald. Physical activity, health impairments, and disability in neuromuscular disease. Am J Phys Med Rehabil 2002; 81(11 Suppl):S108-20.

E. G. Fowler, L. A. Staudt, K. R. Heberer, et al. Longitudinal community walking activity in Duchenne muscular dystrophy. Muscle Nerve 2018; 57(3):401-406.

Z. E. Davidson, M. M. Ryan, A. J. Kornberg, K. Z. Walker, H. Truby. Strong Correlation Between the 6-Minute Walk Test and Accelerometry Functional Outcomes in Boys With Duchenne Muscular Dystrophy. J Child Neurol 2014.

A. Govoni, F. Magri, S. Brajkovic, et al. Ongoing therapeutic trials and outcome measures for Duchenne muscular dystrophy. Cell Mol Life Sci 2013; 70(23):4585-602.

S. Oftedal, K. L. Bell, L. E. Mitchell, P. S. Davies, R. S. Ware, R. N. Boyd. A systematic review of the clinimetric properties of habitual physical activity measures in young children with a motor disability. Int J Pediatr 2012; 2012:976425.

C. M. McDonald, E. K. Henricson, J. J. Han, et al. The 6-minute walk test as a new outcome measure in Duchenne muscular dystrophy. Muscle Nerve 2010; 41(4):500-10.

E. Mercuri, A. Mayhew, F. Muntoni, et al. Towards harmonisation of outcome measures for DMD and SMA within TREAT-NMD; report of three expert workshops: TREAT-NMD/ENMC workshop on outcome measures, 12th–13th May 2007, Naarden, The Netherlands; TREAT-NMD workshop on outcome measures in experimental trials for DMD, 30th June–1st July 2007, Naarden, The Netherlands; conjoint Institute of Myology TREAT-NMD meeting on physical activity monitoring in neuromuscular disorders, 11th July 2007, Paris, France. Neuromuscul Disord 2008; 18(11):894-903.

C. M. Wiles, M. E. Busse, C. M. Sampson, M. T. Rogers, J. Fenton-May, R. van Deursen. Falls and stumbles in myotonic dystrophy. J Neurol Neurosurg Psychiatry 2006; 77(3):393-6.