Rett syndrome – Modus Health

M. Stahlhut, J. Downs, K. Wong, A. M. Bisgaard, E. Nordmark. Feasibility and Effectiveness of an Individualized 12-Week “Uptime” Participation (U-PART) Intervention in Girls and Women With Rett Syndrome. Phys Ther 2020; 100(1):168-179.

M. Stahlhut, J. Downs, K. Wong, A. M. Bisgaard, E. Nordmark. Feasibility and Effectiveness of an Individualized 12-Week “Uptime” Participation (U-PART) Intervention in Girls and Women With Rett Syndrome. Phys Ther 2020; 100(1):168-179.

A. Romano, T. Capri, M. Semino, I. Bizzego, G. Di Rosa, R. A. Fabio. Gross Motor, Physical Activity and Musculoskeletal Disorder Evaluation Tools for Rett Syndrome: A Systematic Review. Dev Neurorehabil 2020; 23(8):485-501.

J. Downs, M. Lotan, C. Elefant, et al. Implementing telehealth support to increase physical activity in girls and women with Rett syndrome-ActivRett: protocol for a waitlist randomised controlled trial. BMJ Open 2020; 10(12):e042446.

M. Stahlhut, J. Downs, M. Aadahl, H. Leonard, A. M. Bisgaard, E. Nordmark. Patterns of sedentary time and ambulatory physical activity in a Danish population of girls and women with Rett syndrome. Disabil Rehabil 2017:1-9.

J. Downs, H. Leonard, K. Wong, N. Newton, K. Hill. Quantification of walking-based physical activity and sedentary time in individuals with Rett syndrome. Dev Med Child Neurol 2017; 59(6):605-611.

J. Downs, H. Leonard, P. Jacoby, L. Brisco, G. Baikie, K. Hill. Rett syndrome: establishing a novel outcome measure for walking activity in an era of clinical trials for rare disorders. Disabil Rehabil 2015; 37(21):1992-6.

J. Downs, H. Leonard, K. Hill. Initial assessment of the StepWatch Activity Monitor to measure walking activity in Rett syndrome. Disabil Rehabil 2012; 34(12):1010-1015.